There is currently no cure for carcinoid syndrome. Even if your cancer therapy reduces the size of your tumor, you still may experience carcinoid syndrome. That's why it's important to stay on top of your symptoms to manage this syndrome as best you and your healthcare team can.
Since carcinoid syndrome is caused by high levels of certain hormones, a primary goal of treating carcinoid syndrome is to reduce the levels of these hormones. Certain somatostatin analogues (SSAs) can help do that but may not fully control the symptoms. In the largest-ever US survey conducted with sufferers of carcinoid syndrome, most reported being dissatisfied with carcinoid syndrome treatments.*
“I would like more options to effectively treat my carcinoid symptoms.”
Patient with carcinoid syndrome
Signs that your carcinoid syndrome might not be well controlled:
SSA therapy over time may cause harmful effects like abnormal blood sugar levels, gallbladder damage, and low thyroid levels.
*The Carcinoid Impact Survey was developed by Carcinoid Cancer Foundation (CCF), Neuroendocrine Cancer Awareness Network (NCAN), Neuroendocrine Tumor Research Foundation (NETRF), Healing Net Foundation, Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS), NorCal CarciNET Community, and Big Apple NETs in collaboration with Lexicon Pharmaceuticals, Inc. The survey was conducted in 2016 with over 500 patients and caregivers as well as 150 oncologists.