There is currently no cure for Carcinoid Syndrome. Even if your cancer therapy reduces the size of your tumor, you may still be experiencing Carcinoid Syndrome. Managing both conditions can be challenging but that doesn’t mean you have to settle for a lower quality of life.
There are a few ways to help improve your lifestyle while living with Carcinoid Syndrome. The most important thing to do is communicate with your healthcare team. Most doctors are confident they can help their patients manage symptoms, but they need to be made aware of them in order to do so. Some key points you should communicate to your healthcare team are:
Since Carcinoid Syndrome is caused by high levels of hormones, a primary goal of treating Carcinoid Syndrome is to reduce the levels of these hormones. Certain SSAs can help do that but may not fully control the symptoms. Fortunately, advancements in treatment are helping to better manage the symptoms of Carcinoid Syndrome.
Now, people with Carcinoid Syndrome can better control their disease-related diarrhea with new oral therapies.
In the largest-ever US survey conducted about Carcinoid Syndrome, 1/3 of people with Carcinoid Syndrome reported being dissatisfied with their current treatment.* If Carcinoid Syndrome is interfering with your life despite being on treatment, you may want to discuss new options with your doctor.
It is important to discuss with your doctor the potential benefits and side effects of any therapy.