Carcinoid Syndrome is rare and can be difficult to diagnose, as it causes symptoms that are similar to other conditions like irritable bowel syndrome (IBS), Crohn’s disease, or menopause. Unlike other conditions, the symptoms of Carcinoid Syndrome are caused by NETs, which produce too much serotonin.
High levels of serotonin in your bloodstream can cause symptoms which affect your daily life, long-term health, as well as your emotional and psychological well-being. Lifestyle choices, such as what you eat and how active you are can also affect your symptoms.
When serotonin breaks down, it creates a byproduct called 5-HIAA that can be measured in your blood or urine. Doctors can test the level of 5-HIAA in your body.
The 5 Es are common triggers for Carcinoid Syndrome. By being aware of these triggers, you may be able to reduce symptoms caused by certain triggers. Everyone’s triggers can be different. It is important to monitor your Carcinoid Syndrome and discuss the best ways to prevent carcinoid crisis with your healthcare team.
Frequent flare-ups can also be a sign that your Carcinoid Syndrome needs more control. Talk with your healthcare team to see what works best for you.
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