Carcinoid Impact Survey

The Carcinoid Impact Survey

The carcinoid syndrome community came together in 2016 as never before to develop the Carcinoid Impact Survey. More than 500 patients and caregivers, 150 oncologists, and 7 leading national and regional carcinoid support groups, in collaboration with Lexicon Pharmaceuticals, participated in the landmark project. Its purpose was to uncover how carcinoid syndrome impacts the lives of those who suffer from it.

The Carcinoid Impact Survey was made in partnership with the following support groups:

  • Carcinoid Cancer Foundation (CCF)
  • Neuroendocrine Cancer Awareness Network (NCAN)
  • Neuroendocrine Tumor Research Foundation (NETRF)
  • Healing NET Foundation
  • Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
  • NorCal CarciNET Community
  • Big Apple NETs
 

To see the complete list of survey results, and to receive more information about carcinoid syndrome, click here.

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